Tag Archive: allergy

Peanut OIT starts

Wellllll well well.  Day one is officially behind us.  And I will admit I had a bunch of anxiety leading up to this day.  Obviously since we completed dairy I trust the process, but having been hospitalized for peanut ingestion before, it was a major mental hurdle for me to do this voluntarily!  We are lucky to have a huge support system, including my family, and friends, and facebook group…all cheering us on and lifting me up through this.  And now we have done it!  We have begun!

We had a normal start to the day with a bowl of oatmeal followed by his milk dose and then we were off to Fremont.

Kyle came with us for this first one, so that was nice.

He started with a 1/1000 dilution of peanut powder (in cellulose powder) which he had a minuscule amount of, and he completed four (!!) updoses in that first appointment on Friday.  We will likely go every other week to really allow his body an extra long time to desensitize to the dose they send him home on.

So now I have a bunch of these little cups of powdered cellulose/peanut to mix into applesauce or yogurt or whatever.

So far so good (some nasal drip but no congestion or meds needed after Saturday morning’s dose).

He is probably getting the equivalent of a grain of flour’s worth of peanut protein but you have to start somewhere right?  This is going to be a long road, but if the end is freedom then I am all in!  I will happily trade in my fear of hospitalization for a year or so of these MD appointments.

Day 9: up and downs

Here’s that beautiful baked dish that I made the night before.  I was literally throwing things into a mixing bowl while I was coming up with a concept of what I was going to make.

I had about a cup of shredded zucchini left and a very brown banana, which is why I needed to do something. Add in coconut oil, eggs, almond flour, stevia, salt and baking soda and you have a lovely little casserole bake.

Clumpy almond milk in my coffee…booo.

Mega cashew butter.  Yayyyy!

Like, MEGA cashew butter.

I smeared it everywhere and dug in.  I ate way earlier than I usually do because we had plans in San Francisco so I wanted to get on the road asap.

Seriously so perfect.  I am especially pleased with this breakfast and will be happy to eat it for the next week, or however long it will last.  The more nut butter on top, the better!

Field trip day!

I have no more of my food to share with you until dinner and that’s because I was distracted by these guys. And all the fun we were having.

Here they are having a snack break while we learned about pterosaurs.

Thank you California Academy of Sciences for having an allergy friendly cafe.  🙂

The “kids meal” comes with fruit and milk (but you can sub the milk for apple juice).  They get juice next to never, but it was a special day so why not.  Also, they were totally melting down due to thirst and hunger so I just needed to get food stat.  The lines were way long but the grill was the fastest, thank goodness, because it was looking to be the safest option for P.  They had a bunch of stations – pizza, salads and sandwiches, bowls, sushi, and grill.  Plus a dessert stand, coffee bar, grab and go fridge, and other random snacks (chips, pretzels, fresh fruit, etc).  By process of (allergy) elimination, I chose the grill station…which was good since the kids MIRACULOUSLY agreed on getting a hot dog (to spilt). I spoke with one of the chefs who seemed very knowledgeable about the items on the menu and told me the bread had dairy in it, so she showed me the GF option (udi’s) and I went with that.  Perfect!  Two slices of bread, one for each kiddo.  They also shared the fruit and hot dog.  Nicely, to boot.  V took the tomato and P took the lettuce, and the plate was basically left empty (both tried and disliked the pickle).

Once they were part way through their meal (and their blood sugar had stabilized) I took them with me to go to the coffee bar.  Then we were all happy.  Sitting with my almond milk decaf latte, hanging with my big kids, eating like a party of three.

I got this for myself too…because when this diet is done, I’m going to want this flavor.

We stayed way too late at the aquarium and didn’t get home til after 5 pm.  Oops!

I was beyond hungry by the time we got home.  Like my body had shut down.  Big time fail on my part.  I packed my pills and took them while we were out, though, so at least I didn’t totally shoot myself in the foot gut. But have you ever waited soooo long to eat that your body is beyond the hungry phase and then acts like it forgot how to work at all.  It’s like it’s shut down altogether but you know the second you get food it’s going to freak out and overreact and feel horrible.  Yeah. I’m ever so slightly familiar with this phenomenon and it is the worst.

Lucky for me I had a 2.5 hour drive home (Friday traffic, yay!) to brainstorm what to make for dinner. Taco salads!

Daiya cheese probably has things not fodmap friendly but I wanted it anyway, dangit.  Plus, I already knew my gut was going to react to food, no matter what I ate.  I have lived with this digestive system for 30+ years and there are certain parts about it that I have definitely figured out.

Almost forgot the avo!!  Phew.

I definitely had 30 minutes of weird pangs and gurgles and digestive discomfort and then it basically went away.  Odd.  That’s been the biggest change since doing this diet.  Any GI “issues” I have with my gut after a meal are so short lived!  I’m used to feeling gassy around the clock, to be honest, so it’s nice that it goes away so quickly.  I’m not sure if that’s related to the herbal supplements or the low fodmap diet.

I had kombucha later, and went to bed feeling quite good.

At some point I’ll focus less on killing the bad overpopulated bacteria and more on repopulating the good bacteria (meaning taking probiotics and prebiotics, some of which contain fodmaps, and increasing my carbs to include more starches).  IBS is so tricky that it’s hard to discern “die off” symptoms from my usual GI woes.

Milk OIT graduation

I AM SUCH A PROUD MAMA!

After several months of weekly visits to the Columbia Asthma and Allergy Clinic in Fremont, my son is a graduate of the milk OIT protocol!  He will now drink 1/2 cup (120 ml – equivalent to 4 g of protein) of whole milk twice a day for the rest of his life as a part of maintenance.

After a month, we are allowed to experiment with different kinds and amounts of dairy, with the thinking being that in another few months he will achieve “free eating”, thereby tolerating any dairy.  We will see.  In the meantime, I’m just celebrating the fact that he drinks a cup of milk each day without issues.  This is major.

He has been such a trooper throughout this and is very excited at the idea of trying cheese.

Many thanks to the following, without whom/which we could not have done this:

MY PARENTS!!!!  For being supportive and encouraging and most importantly for watching Valley girl on Friday mornings while we were at his appointments. And for letting us crash at their house every Thursday night – and some Fridays.  And feeding us.  And basically just being the best parents ever.

The Davis Library.  For the amazing book on cd selection which enabled me to make it through months and months of OIT appointments without an iPad.

NPR’s Wow in the World podcast.

Highlights magazine.

Starbucks stir sticks (which served as drumsticks) week in and week out.

The entire staff at Columbia Asthma and Allergy.  They are sweet and attentive and I really feel like he is so safe in their care.

LAST DOSE!!!

Amazing.

We drove home after picking V up at my parents’ house.  Neither had napped so I expected they would both crash as soon as I set off but P was SO into the wow in the world podcasts that he stayed up the entire ride home listening to them one after the other.  We have even repeated the kissing fish one a few times and he still doesn’t care.  I highly recommend them for anyone with 4+ year olds.  It’s targeted to kids a little older than P but he still enjoys them immensely and whenever I quiz him on the facts at the end of the episode he can answer any question I throw at him!!  Guy Raz’ even makes me stay tuned, so I definitely get the allure.  Plus, who doesn’t like learning random scientific facts!?  V slept the whole way.  😉

Snack time!

Happy graduation day.  We will be celebrating with a family trip to play mini golf on Sunday.

We ate out at a restaurant!

As a FOURSOME!  Meaning all four of us ordered from the menu and ate the food that was prepared in a restaurant kitchen and I didn’t pack up ANYTHING to bring!! Weeee! It was a big moment.

We went to Pushkin’s Restaurant (again) because it’s entirely gluten and dairy free, and remains one of the best brunches we’ve ever had.  They have a vegan menu too, although P wanted bacon and eggs so we didn’t regard that menu this time.

They don’t even have (cow) butter on the premises!  They make everything – hollandaise, baked goods, etc. – ALL with vegan butter!!  Basically this restaurant is my dietary dream.

Kyle got a BLT.

V got waffles.

I got avocado toast.

P got two eggs, with hashbrowns, greens, and bacon.

We also got a side of eggs and bacon for the rest of us to share.

I let him order his own meal, which he loved.  He said “I want the bacon one with no peanuts or cow milk”.  Ha.  I clarified his order, but as you can see, his priority was the bacon.

For the record, the night before, we told him we were going to the restaurant and I was asking him if he knew what he wanted.  He thought about it for a bit and then later said “mama, let’s get a plan before we go to the restaurant tomorrow”.  I asked if he wanted to look at the menu in advance to see what they had and he immediately nodded and said “yeah, let’s look at the menu and you can read me all the options and I can pick out what I want…do they have bacon?”.  HE IS SOOOOO MY CHILD!!!

The waffles were sooo good.  I stole a few bites from V and I think they were the best thing any of us got.  They came with maple syrup and vegan butter.  Delish.

Kyle’s BLT came with fries, which he managed to leave alone.  It WAS 8:30 am after all.  He said is was awesome.  And we both still think it’s maybe the best brunch in town.

I swiped some eggs too because they were cooked perrrrrfectly.

Here’s what I got!  It was a huge portion – each of those halves are like mini baguettes.  I ate half and saved the rest for later…I didn’t want to push my stomach since I was still recovering from my GI bug and I was also stealing bites of the bacon and egg sides we got.

Buddies.

I gave him his dose after the meal and then we packed up the leftovers to bring home.  I also got a strawberry rosemary scone to take home…because why not??

Leftovers for lunch.  I offered the fries to the kids but P didn’t want any (?!?!).  V, however, was thrilled at the offer and ate every last one.

One day at a time

Oh hi chocolate banana milkshake that is healthy.

We had planned on going to a park this morning, but P had a reaction to his am dose so I was keeping it mellow indoors until he got through it.  A few hives this time, and a pretty brutal case of congestion and wheezing, but meds and time (and snuggles) heal all. V is less understanding, but it’s all good now.  It’s easier to talk about once it’s over, because when you’re in it, you’re just kinda waiting…and waiting…and waiting…to see how bad this is gonna get before it starts getting better.  Luckily, he was fine and I didn’t have to call for backup.  Crisis averted.  We killed more time going to TJs and Nugget, and by the time we got home he was 100% again so I let them play in the backyard while I unladed the groceries and made lunches.

Back to himself indeed.

We are slowly inching our way back up to the dose he last got to at the MD office on Friday, but I’m not going to rush it.  It may be a few weeks before we get there because I want to make sure his body isn’t under too much stress.  And as a result, we are skipping the next two weeks of Friday up-dosing appointments.  This is my decision, not the MDs, but I know it’s the best for P.  I don’t want him to hate OIT and since he has been such a trooper thus far, I feel like the symptoms he’s been having are the way his body is telling us to slow down.  It may take us months to get to the end (as opposed to the 1-2 remaining appointments we were supposed to try it in before this hiccup), but we will do it the gentlest way possible.  Slow and steady wins the race!

I made an Asian ramen slaw salad for dinner with chicken and it was received with rave reviews.

P was in a MOOOOOD after a swimming (I know it’s better that he’s not napping but it’s still pretty awful after 5 pm) and was acting like he didn’t want to like dinner (regardless of what it was), but after one bite he made a complete 180 and was scarfing his portion down.

I mean, he was the one who chose which ramen noodles we got at the store!

Went to Nugget for these since Tjs doesn’t have ramen.  I saved the packets for some other use. It’s probably just like miso soup?

I should have written down the recipe for the dressing because it was A+ work if I do say so myself.  I had looked up other similar recipes the night before so knew roughly what to do.  I used canola oil, sesame oil. tamari, rice vinegar, and honey.  Then added a bunch of sesame seeds and tossed it in green cabbage, and a slaw mix.

After the lettuce was covered in dressing I added in the noodles, which I roughly crushed by hand. I let it chill in the fridge while I baked two chicken breasts, and once those were done I diced them and added them in too.

I love when I finish dinner entirely during nap time. It means coming home from our PM activity is effortless.  Or at least as effortless as anything is with preschoolers.

Yummmmm.  I would eat this back to back nights no problem.  And you could swap in anything for the chicken – edamame, slivered almonds, salmon, shrimp, whatever!

After the morning scare, this was NOT a night for skipping dessert.